My mom was having trouble eating all summer but she blamed it on acid reflux. When that didn't go away in the fall she saw her primary care doctor who did some blood work and referred her to a specialist. She has stomach ulcers and was convinced that was the problem. She saw a gastroenterologist. They took an ultrasound and an x-ray of her chest cavity and discovered nodules on her lungs that looked concerning. She saw a pulmonologist and a CT scan confirmed that her lungs needed a further look. But the pain from her stomach was getting worse so it was back to the gastroenterologist for an endoscopy. They found a large mass in my mom's stomach, a mass on her esophagus, and a nodule on her liver. A biopsy was taken. She went to a cardio thorasic surgeon for more tests. A PT scan revealed more nodules on more organs. We waited for the pathology results knowing that it was the "c" word.
In October, my mom was diagnosed with stage 4 Diffuse Large B-cell non-Hodgkins lymphoma. By that point, she'd lost about 50 pounds and was getting weaker. Her team of doctors decided to take swift action.
A week after her diagnosis, my mom was admitted to the hospital. A chemo port was implanted in her chest. She received her first round of chemo (which she reacted to well!) followed by her first round of immunotherapy (which she did not react well to).
When she returned home from the hospital, life returned to normal-ish for my mom. She was on tons of medications and was more tired than normal. She had her second round of chemo and developed mouth sores and a scratchy throat. The immunotherapy gave her severe nausea. She was even more tired than she was before. She has 5 more rounds of chemo and immunotherapy spaced 3 weeks apart before her team of doctors put her body through a long list of tests to determine what happens next.
I can't begin to describe the inner turmoil I have under my sunny smile in work meetings or the ache in my gut as my voice cracks while I'm cheerfully cooing at Claire. I'm so incredibly angry. Who am I even angry with? I wish I knew. My inner anguish has started to spill over to my physical body - I threw my back out for the first time ever, every week or so I'll have an episode of uncontrolled vomiting that comes seemingly out of nowhere, and a racing heart is just something I've come to live with. In an effort to fix what I can, I've pumped up my exercise routine and gotten back to a regular meditation practice.
The unknown rocky road that lies ahead is terrifying and with COVID adding another layer of difficulty to the mix, I'm especially scared. My goal right now is to make all of my mom's time precious - lots of video chats with the baby and visits whenever we are able (socially distant and masked).
It's going to be a long winter.



















